Patient Stories

Real stories from vasculitis warriors sharing their journey of challenges, resilience, and hope.

These are real stories from vasculitis patients across India, sharing their journey with diagnosis, treatment, and life beyond. Your story can inspire others.

DADA2 · Brain Aneurysm · May 6, 2025

Beating the Odds: My Journey with DADA2 and Brain Aneurysms — Now Living Happily

— Santosh Kumari, Age 55

Diagnosed with DADA2 in 2022 after surviving bilateral brain aneurysms, Santosh's story is one of courage, precision medicine, and finding happiness on the other side...

PAN · DADA2 · April 21, 2025

Living with Strength: My Journey with PAN and DADA2

— Nikita, Age 39

From a stroke and vision loss in 2007 to a DADA2 diagnosis in 2022, Nikita's 17-year journey is a testament to patience, family support, and the power of the right treatment...

GPA · Granulomatosis with Polyangiitis · April 6, 2025

From Pain to Hope: My Journey of Survival and Healing at PGI

— Sunali, Age 24 · Kangra, Himachal Pradesh

After months of misdiagnosis, near organ failure, and complete hearing loss, Sunali was finally diagnosed with GPA at PGI Chandigarh — and made a full recovery three years later...

Video Story · Voice of Vasculitis · March 25, 2025

Voice of Vasculitis #5

A patient bravely shares their personal journey living with vasculitis — from the challenges of diagnosis to finding strength, support, and hope...

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Video Story · Voice of Vasculitis · March 25, 2025

Voice of Vasculitis #4

A patient bravely shares their personal journey living with vasculitis — from the challenges of diagnosis to finding strength, support, and hope...

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Video Story · Voice of Vasculitis · March 25, 2025

Voice of Vasculitis #3

A patient bravely shares their personal journey living with vasculitis — from the challenges of diagnosis to finding strength, support, and hope...

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